Bleeding Disorders Organizations Partner to Prepare for Coming Medicaid Changes

 

Medicaid work reporting requirements, enacted last year as part of HR 1 (the One Big Beautiful Bill Act), will soon go into effect. The national bleeding disorders organizations want to update you on what we are doing to prevent coverage losses – and outline our plans to provide the community with information and tools that can help you answer questions from concerned members of our community.   

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Background.

Under the new law, many adults who have or who are applying for coverage under the Medicaid expansion pathway will have to meet work requirements (also known as “community engagement” requirements) and more frequent eligibility determinations starting in 2027 or earlier. While some details remain fluid, we know that these requirements will impact many people living with bleeding disorders as well as the hemophilia treatment centers (HTCs) where they receive care. The new work requirements will create administrative barriers – red tape – that will, unfortunately, jeopardize coverage and continuity of care for many, even those who are working or who qualify for exemptions.   

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The bleeding disorders community faces many coverage challenges in 2026: Medicaid work requirements, but also high insurance premiums, narrow formularies, copay accumulators and maximizers, and much more. The national organizations are coordinating efforts to keep you informed and to safeguard community members against loss of coverage, uninterrupted access to care. 

 

We will keep you informed.